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Heads Together for ABI

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June 2018 Newsletter

Format QuotePosted on June 29, 2018August 27, 2020Author AdministratorCategories Newsletters

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I am fortunate to have known Kate before Heads Tog I am fortunate to have known Kate before Heads Together was even conceptualised. In fact, I recall the conversations we had whilst Kate was brainstorming ideas after seeing a gap in the provision of genuine, ongoing support for kids and families dealing with ABI’s. Kate’s passion, compassion and physio experience was all channeled into her creation of Heads Together and that very first camp. It’s incredible to think that was 20 years ago! The first Camp was so memorable and special. Parents and children enjoying freedom, support and making friendships whilst finding common ground with other parents / children/ siblings who could truly understand - all in a beautiful bushland environment. The 'Fire of Friendship' was a moment that will stay with me forever as the pure power of togetherness. People’s faces bright in the firelight, all shared what camp had meant to them. It was humbling and heartwarming. Kate’s beautiful mum, Barb, was there and an integral part of the magic - and Barb was so, so proud. Our friend Sean Lusk, who had undergone 2 lung transplants himself, volunteered his time and help at those early Camps, and his compassion and generosity lives on in the volunteers to this day. Being a volunteer is so fulfilling & such a meaningful thing to feel part of, and ethos to pass on to our children. My son has also been part of the fun and community at events and camps - I now watch him reach out and be compassionate to those who move through the world with added challenges. This is thanks to being part of something bigger - and inspired by Heads Together awesome humans. Thank you to the entire Heads Together staff and volunteers who make it all possible. Thank you to the families and children who create the Community by trusting in the process. You are the reason, the heart and the soul. Heads Together really is a family, ever evolving and truly making a difference. Watching those legends who attended the camp as young children return as leaders is phenomenal and a testimony to the concept. I’m proud and grateful to be a part of Heads Together since the very beginning and am looking forward to the next 20 years! xo KT #20yearsHeadsTogether
My favourite memory of camp would have to be all o My favourite memory of camp would have to be all of them. You can’t just pick one. There are so many good ones, from all the friends you make, and all the awesome activities and games you do. From the giant swing to the talent show/disco night, to all the awesome themes that they pick with everyone dressing up in their amazing costumes. Heads Together has shown me that you can’t judge a book by its cover, and that everyone is different, and there’s nothing wrong with that. Just because you have brain injury doesn’t mean it limits you or stops you from doing what you want, or from doing what everyone else is doing. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
My two children, Mitchell and Courtney, and I came My two children, Mitchell and Courtney, and I came to our first camp almost 15 years ago, after moving to Melbourne from Sydney. We were encouraged to attend the camp by our Case Manager from the Children’s hospital and decided to give it a go.. Best decision I ever made! From the first night we arrived, I felt like I had found my village! My kids and I made friendships that have lasted ever since that I know will be everlasting 😊 The camps have provided us with fun, laughter, joy and tears and as a parent it’s been such a privilege seeing all the young people we met all those years ago grow up, have families, get married and achieve amazing things in their lives, including my kids. It’s hard to define my favourite memories from camps. But our sparkle fingers at campfires will always be a special memory, and the love and emotions we shared with each other around the fire. Heads Together has impacted my life in such an amazing way, lifelong friends, a sense of belonging.. I often speak of the Heads Together camps and always do it with pride. So, thank you to all our kids, the amazing parents, volunteers and of course the heart and soul of this organisation, the Heine family. Much love and sparkle fingers to you all. Jo #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
My name is Reece, and I was in a car accident in J My name is Reece, and I was in a car accident in July 2007 which left me with a brain injury when I was 14 years old. I joined the Heads Together community in November 2007. All of my education curriculums have been modified, along with extra breaks, ability to remove myself from a room for a little bit, having a note taker, even preferences of class times. Originally I wanted to do Nursing however, my brain injury made it difficult . I took a few years off from studying and stumbled into pole dancing and aerial fitness (which I love) and have now chosen to direct my focus. I really struggled with fatigue. This impacts my concentration and attention, and my ability to process information quickly and effectively. With too much stimuli I am unable to focus. My high school was mostly a supportive environment. My teachers were understanding and helpful throughout. I did have one experience that stuck with me negatively. A teacher said I would be too tired and would fail VCE. Thankfully I didnt have much to do with that teacher. And I completed VCE. I had some great opportunities through my high school. In year 9, I went to America with the school band, but as it was so soon after my accident, my dad come along as my support person. In year 12 I travelled to South Africa with a small group from my high school as well as a few other schools, and I helped teach English for 2 weeks. This was my first time travelling without an official carer or family which was great for my independence. It’s tough when people dont understand what you’re going through and you’re probably not going to understand either, and that’s ok. Try to listen to yourself. Other people may tell you what you need to do and sometimes that works. But listen to yourself because that could also work. You’ll learn more through exercising your choice rather than someone else’s choice. I continuing with my own training as an advanced level student in pole dancing and aerial skills. I am studying part time at Deakin University doing my Bachelor of Exercise and Sports Science. I’m focussing on getting through and will think about potential work opportunities closer to when I finish.
We first met Kate at rehab, we soon realised she w We first met Kate at rehab, we soon realised she was something special and had a lot to give to helping and including others. Kate was a huge part of our son's recovery and soon became a huge part of our family, we would not be where we are today without her guidance and love. I remember all sitting on the floor in our lounge room throwing around ideas for camp, and then with her persistence and lots of help from other amazing people, Camp was born. Camp was a place we finally felt understanding Somewhere we belonged somewhere we didn’t feel alone a place of acceptance a place to grow and learn a place to feel safe But most of all a place where we made amazing life long friendships. My favourite memory from camp is seeing the smiles of all the kids faces and them being included in everything (I might have another one, me telling a first time camp family the fire of friendship was a cult , lol). Heads together impacted my life in so many ways Congratulations to all involved over the years and making camp what it is today. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
This week we celebrate National Volunteers week an This week we celebrate National Volunteers week and want to thank the more than 400 volunteers who have made Heads Together possible over the past 20 years. "Volunteering changed my life in the best ways possible, it has given me courage, strength, and the passion to keep growing Heads Together these past 20 years. I was inspired to volunteer as a kid by my Mum who showed me that volunteering is a career and taught me that it really is true that the more you give, the more you get in return. I love that my two girls are now volunteering because I know that it has and will continue to shape them and keep them connected to community which is the greatest gift any of us can receive." https://www.volunteeringaustralia.org/get-involved/nvw/ #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
Today we launched the Heads Together for Brain Inj Today we launched the Heads Together for Brain Injury Community Network - A collective of people with professional and lived experience of brain injury, coming together to share ideas and drive positive change. If anyone is interested in joining the network, please email kate@headstogether.org.au #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
Celebrating all our Educator Champions Today on Ed Celebrating all our Educator Champions Today on Education Support Personnel Day https://www.aeuvic.asn.au/ESP_day #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
My favourite memory of camp was always watching th My favourite memory of camp was always watching the joy on all the kids faces. A particular highlight for me was being amazed at children expressing themselves at the fire of friendship. I also enjoyed witnessing milestones being reached of other families. I just loved hanging out with the other dads and having a drink. Camp has influenced my life in many ways. It has taught me that a group of like minded people can be powerful in healing, development and growth. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
My favourite memory of camp isn't a specific one, My favourite memory of camp isn't a specific one, it's the feeling like you're with family, the laughs, the being yourself and letting walls down. Heads Together is family! Going through my teenage years I felt like I was alone and no one knew what it was like to have a sibling with an ABI, no one my age truly understood what it felt like until I went on a Heads Together camp. It showed me there are many people going through the emotions and challenges of it and other people my age as well, it was the best thing I ever got introduced to! I have made life long friends and it introduced me to a career that I absolutely love!! #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
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I first volunteered with Heads Together for ABI as I first volunteered with Heads Together for ABI as a freshly graduated Physiotherapist. I was young, full of energy and with absolutely no idea where my career was headed. Camp quickly became a regular fixture in my calendar and the community became my people. I began working with children and I still think I have the best job in the world 20 years later. I strongly believe that my experiences with Heads Together for ABI have made me a better Physio, a better parent and a better person. I am forever grateful for this community. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
Coming to my first camp was a mix of excitement an Coming to my first camp was a mix of excitement and anxiety. Though as soon as I arrived the anxiety eased, and I felt a sense of calm. Everyone was respectful of each other, kind and I very quickly felt a part of the family. Being a part of the Heads Together community has allowed me to have greater confidence in myself. From the leadership skills I gained, and role modelled, to now working in the mental health/ disability sector and continuing to be an advocate for my brother. As someone who came into Heads Together as a 10 year old sibling, becoming a volunteer of camp was incredibly humbling. Heads Together has introduced me to some of the most beautiful people and has shaped me into the person I am today. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
It’s hard to put into words the profound impact It’s hard to put into words the profound impact the Heads camp had on our family. Ryan’s injury was an incredibly traumatic and isolating experience. Being at RCH was extremely difficult with absolutely no support or understanding of what was happening, then on to rehab where the patient becomes a cog in a very busy wheel. It was easy to be on auto pilot just trying to cope with all the changes in our little boy's life while doing anything possible to help with his recovery. Obviously, everything else gets put on hold. Then along came the offer to attend a camp with other kids with an ABI. Even though none of us knew what we were doing there, there was an instant environment of calmness and acceptance. I didn’t appreciate what had been missing till being there. Just knowing that every parent and volunteer there was watching out for your child with absolutely no judgment of challenging behaviours was like a massive weight being lifted. Seeing all the kids having fun was awesome and the way time was made for the siblings was very thoughtful. Being able to compare shared experiences with other families provided so much support and comfort that we weren’t alone in what we were dealing with. Subsequent camps became a much anticipated chance to have time out from what we were dealing with in adjusting to life with a child with an ABI. It was also very satisfying to know the contribution we were making to help the the volunteer therapists understand our lives outside of therapy and they were amazing for giving up their weekend for us. Plus having the chance to help create information that would assist other families who found themselves in this situation was great. Much gratitude Leanne #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
I went to the very first camp 20 years ago, I was I went to the very first camp 20 years ago, I was 9 years old when my family first attended back in 2003. I can remember my family having mixed emotions about attending. I recall being very excited when Mum told me that we would be attending a camp with children and families just like mine. I was yet to meet any children that had a brain injury at that point in my life and I was quite eager to at this point. I was feeling quite isolated and scared early on in my recovery trying to find where I belonged post brain injury. The friends I have made at camp are the most understanding, down to earth and respectful people I have ever had the privilege of meeting. Some of my best childhood memories are from camp. It made me feel as though I had a place I belonged. It gave me a place where I could focus on my strengths, not on the things that I needed to work on, which was really uplifting for me. That feeling never really left from that day on, camp gave me a feeling of belonging. Camp has impacted my life in so many positive ways, it has given me the strength the know-how and the much needed encouragement to pursue a few of life's big challenges. It gave me the confidence within myself to know that I can move out of my lane out of the norm and away from what was expected of me. The knowledge to know that I can achieve things that were never thought possible. I just might need to go about it a different way and might look a little different in my pathways to getting there. It has driven my career and drive to help others who find themselves in a similar place to me. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury #20yearsHeadsTogether
Its 20 days until our 20year Anniversary!!!! Over Its 20 days until our 20year Anniversary!!!! Over the next 20days, we will be sharing lots of memories from some of our OG campers, so please follow our stories and share with all the people in your lives as we countdown to the big 20!!! Support us to keep these amazing camps going, each camp costs around $25,000, so every dollar counts https://www.headstogether.org.au/donate/ #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury
My accident was at the end of year 9 during the su My accident was at the end of year 9 during the summer holidays, so my year 10 curriculum definitely changed. I returned 3 half days a week so I could keep up with the therapies and cope with the fatigue I was experiencing at this time. I really started to struggle with bullying and other issues, then by halfway through year 11 I said no more and I left that school. I went to a transition school for a while and then found a new high school which worked much better for me. I chose to take the VCAL path to fit in with me and my needs. Finishing up VCAL was a rewarding experience, I remember on the last day, I was working on an essay all day even though it was full on with my fatigue. It was an amazing feeling and a huge weight off my shoulders. My biggest barrier was working with different people. Both Teachers and peers. Experienced teachers did not understand that the cookie cutter approach doesn't work for me. Just because I was not doing things the "normal" way they thought I was doing it wrong. Peers did not understand what I was experiencing. I lost all my friends after my accident which was a really hard thing to manage. On top of everything else, I had therapy commitments and school which was overwhelming, along with managing fatigue. I describe my high school experience as " It felt like I was going to a formal function where everyone was dressed, prim and proper and I had on clothes that were five sizes too big" If I could give advice to someone in a similar position to me back then, it would be to "speak up or don't speak at all". I was getting detentions and misbehaving because the cookie cutter approach did not fit me. No one understood what I needed at the time. “They must have thought I was getting Saturday detentions because I like them or something" Since leaving school, I’ve done lots of things, I did some TAFE courses and then a glazier apprenticeship. Last year I did a 100km fundraising walk for Heads Together and raised almost $20,000. At the moment I am taking a break trying to find my feet and figure out what it is I want to do next. Whether that be a brain surgeon, garbage man or rocket scientist, just taking a moment to take stock.
Hey, my name’s Seth and I’ve been part of the Hey, my name’s Seth and I’ve been part of the Heads Together community since I was 7, almost 12years ago. I had a stroke when I was only one day old, so this is the only life I’ve ever known. For me high school was lonely and chaotic. I would say lonely because I had to isolate myself in order to focus on my schooling, I also chose to do this because it was how I dealt with stress and at this point I was dealing with mental health issues as well as some big life stuff cos I lost my Mum when I was 13. I would say chaotic because I was forever changing what I wanted to do with my life at the time. I didn’t have a modified curriculum, the educators at school and the people in charge of my education knew me pretty well. I did, however, have to deal with a lot of stress towards the end of my schooling because I found that there was a lot more pressure put on me in year 11 and 12, so I opted to do VCAL in my final years of high school. I actually wanted to do a carpentry apprenticeship, but this didn’t work out because we live in a small town, and no one was ready to take on an apprentice in the time that I needed. This is why I chose the VCAL route and was able to work in landscaping which I really enjoyed. Looking back, if I could give any advice to someone in a similar position, I would probably say take it one day at a time. And worry about things that you can control rather than worrying about the next 3 to 6 months, especially when it comes to schooling. Since finishing VCAL last year, I’ve been working in a local restaurant which has been really hard work but good. Unfortunately, I had to cease my job at the restaurant because it's relocating, but I do have plans to begin a chef's apprenticeship at Puckapunyal military base beginning May 1st. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury
Hi, I’m Leigh and I had a brain injury when I wa Hi, I’m Leigh and I had a brain injury when I was 16. It was from an aneurysm which was caused by a condition called Arterio Venus Malformation, or AVM for short. As you can imagine brain surgery and rehab kind of messed up my last years of high school. During my time in High school, I completed an External- Year 12 Completed Pass, which was positive, but I wish I did VCAL instead from what I know now. But we all get to our goals eventually. What I learned after my brain injury is that I had become a kinesthetic learner, I learn by doing. And I soon found that TAFE was where I best retained information. I had to take my time with my courses and choose the long route to succeed as this was the best way for me to learn. While at TAFE, I enrolled into a Certificate 3 of Disability which I nearly completed after a year but was told I would need to do another year which I didn’t want to do. So, I changed gears and tried another TAFE where after some discussion, I enrolled into a Cert 4 of Health & Leisure. Once again, the battle was real as "learning" isn't where I'm strongest, my brain injury has made short term memory really challenging. But I know that it's a necessary evil to get to where you want to go, and it's worked because for the last 4years I’ve had a great job as a Learning Support Officer at a TAFE where I get to make that learning pathway a bit easier for other young people with disabilities. #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury
Mothers Day is coming up!! And what better gift to Mothers Day is coming up!! And what better gift to Celebrate mum than this amazing offer with the Entertainment Membership. Click here to order online now! https:/www.entertainment.com.au/orderbooks/9r67151 #ABI #TBI #braininjuryawareness #headstogetherforabi #headstogetherforbraininjury #nonprofit #braininjury #acquiredbraininjury #headinjury #traumaticbraininjury #braininjurysupport #mentalwellbeing #braininjuryadvocacy #inclusivity #LivedExperience #Volunteering #ABIAwareness #ABISurvivor #TBISurvivor #braininjurysurvivor #YouCantBeWhatYouCantSee #UnderstandMeUnderstandMyBrainInjury #YouCantUnderstandWhatYouDontKnow #understandingbraininjury
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